Hope NOW For ALS News!
Here you will find all the updates we post for our supporters. Click the title to read the entire update.
NEALS NP001 Webinar Registration The Northeast ALS Consortium (NEALS) is hosting a webinar to explain the Phase 2B in more detail on Tuesday, February 21, 2017 at 3:00 – 4:00 … Continue reading NEALS NP001 Webinar
Predictive Algorithms To Revolutionize Clinical Trials EXCITING NEWS! Hope NOW for ALS has been busy this year meeting with the FDA, researchers, and bio/pharma companies to promote a methodology for … Continue reading HNFA Progress Update – 12-08-2016
THE SIGNIFICANCE OF THE SAREPTA APPROVAL The FDA’s granting of Accelerated Approval (AAP) for Sarepta’s eteplirsen for Duchenne Muscular Dystrophy (DMD) marks a clear turning point in thinking at the … Continue reading The Significance Of The Sarepta Approval
BRAINSTORM CELL THERAPEUTICS PHASE II TRIAL RESULTS July 18, 2016 Hope NOW For ALS is honored to be participating with Brainstorm and its statisticians and investigators in the analysis of … Continue reading BRAINSTORM PHASE 2 RESULTS
Letter to Congress (July 1, 2016) RE: Request for your support of The Right to Try Act (S.2912/H.R. 3012); The REGROW Act (S 2698 / H.R. 4762); and The RESULT … Continue reading Letter to Congress (July 1, 2016)
Time For Refreshment We at Hope NOW For ALS are constantly striving to be a better resource for you, the ALS community. To that end, we decided our website was … Continue reading New Look!
Dear supporters, We have some exciting news to report! As you may recall, Hope NOW (HNFA) met with the FDA for the fourth time in late August and proposed a clinical … Continue reading Latest From HNFA
In Phase 1 trials, healthy people, often students, are offered money to test new drugs for safety. In a Phase 2 trial, people with the targeted disease are enrolled and … Continue reading Terminally Ill Denied Treatment – that Healthy People are Paid to Try
1) Call to Action (details below) 2) Hope NOW will be issuing a new CHANGE.ORG petition that focuses on our current goals. Please watch for it in your email: “Terminally … Continue reading No Accelerated Approvals (AAP) for ALS!
ALS is a progressive neurological disorder that has always resulted in progressive deterioration and death. There is no cure and the only approved treatment extends life on average 2-3 months. … Continue reading Hope Now for ALS – 21st Century Trial Design original proposal to FDA